Last reviewed: May 28, 2026

IBD Movement is a lived-experience publication about inflammatory bowel disease. It is not a clinical resource, a medical journal, or a patient advocacy organization. It is one person — me, Ben Rogers — writing about IBD from 24 years inside the disease.

This page describes the standards I hold myself to, what you can and can’t expect from the content here, and what to do if something is wrong.

Who Writes Here

I do. Ben Rogers — sole author, sole editor.

I was diagnosed with Crohn’s disease in 2002 at 33. I spent 23 years on Remicade before an insurance switch forced me to Rinvoq in early 2026. I am not a gastroenterologist, a nurse practitioner, or a medical researcher. My authority on IBD is experiential: I have been the patient in the room for 24 years, and I’ve learned to read and translate the research that governs those rooms.

There is no editorial board. There is no medical reviewer. Content is not peer-reviewed. What you get here is my honest interpretation of the research and my honest account of what living with this disease is like.

What IBD Movement Is and Isn’t

IBD Movement is:

• A translation layer between medical research and the people managing IBD day to day
• A first-person account of living with Crohn’s disease long-term
• A calibrated reading of what new research actually means — phase, population, limitations, timeline

IBD Movement is not:

• A clinical authority on IBD treatment
• A substitute for a conversation with your gastroenterologist
• A site that recommends specific treatments or dosages
• A peer-reviewed or medically reviewed publication

If you need clinical guidance, your GI team is the right source. Nothing here should be used to make or change treatment decisions.

Editorial Standards

Prohibited vocabulary

The following words and phrases are banned from headlines and actively avoided in body copy. They signal overclaim, false hope, or hype that IBD patients have already been subjected to enough:

• breakthrough
• hope on the horizon / new era of hope / new era / new dawn
• fresh hope / fresh promise
• revolutionary / game-changer / game changer / groundbreaking
• miracle / miraculous
• could transform / could change everything
• transforming life / transforms life
• unlocking hope / ray of hope
• silent struggle / hidden menace

“Transform” alone is not prohibited — only the phrases above that indicate overclaim. “Hope” in body text is fine; only the phrases above are banned.

Phase and timeline disclosure

Any post discussing a new treatment or study states:

• What phase of development the research is in (Phase 1/2/3, preclinical, approved)
• What the study population and endpoint were
• What would have to be true for this to reach patients, and roughly when

Phase 2 is not Phase 3. “Promising results” in 50 patients is not a treatment.

Source attribution

I link to primary sources — peer-reviewed studies, FDA filings, clinical trial registrations — when I have access to them. When I’m working from a news summary or press release, I say so. I do not claim to always cite original research; I cite what I have and am transparent about when I’m working downstream.

First-person grounding

Personal posts — reflections on my own experience, medication changes, living with perianal disease, navigating insurance — are written in the first person and make clear they reflect my experience, not a clinical norm. Research posts distinguish my interpretation (“what I make of this”) from what the study actually says.

Limitations stated

Every post about new research names the limitation. Sample size too small? Say so. Short follow-up window? Say so. Industry-funded study? Say so. The goal is calibrated information, not headlines.

AI Use Disclosure

I use AI tools to help research and draft content. Every post is reviewed and edited by me personally before publication. The voice, the editorial judgment, the decisions about what to include and what to push back on — those are mine. AI assists the drafting process; it does not replace the patient perspective that is the whole reason this site exists.

Synthetic patient voices — AI-generated stories presented as lived experience — do not appear here.

Medical Disclaimer

IBD Movement publishes educational content only. Nothing on this site constitutes medical advice. I am a patient, not a clinician, and my interpretation of research is not a substitute for clinical evaluation.

Always consult your gastroenterologist or IBD specialist before making any changes to your treatment plan. IBD is a complex, individual disease; what applies to my case may not apply to yours.

Corrections and Feedback

I make mistakes. If you find a factual error in a post — a misread study result, an outdated treatment status, a number that’s wrong — please tell me. I will correct it promptly and note the correction at the bottom of the post.

You can reach me via the contact form on the About page or on Bluesky.

I don’t guarantee a response to every message, but I read everything.

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This editorial policy was last reviewed on May 28, 2026. It will be updated when my process changes — not on a fixed schedule.